"I'm a normal kid like you!”
What is cystic Fibrosis?
Oli and Nush simply explain what is CF and all the daily things a kid with CF has to do -
explained for kids by kids!
explained for kids by kids!
Information Healthy people should know
About Cystic Fibrosis
"Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure."
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What Healthy People Don’t Realize About the CF Life
"You might not feel sick. Not even a sniffle. But people with healthy lungs often harbor bacteria they don’t feel, but which could kill CF patients, such as pseudomonas or nontuberculosis mycobacteria. So, don’t think we’re being paranoid if we take hygiene precautions around you, even if you aren’t “sick.” A sniffle for you could be pneumonia for us if we catch your germs."
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How Cystic Fibrosis Is Like Fifth Grade Math
"Do you remember in fourth grade when your class was combined with the fifth grade, and you sat paralyzed with fear as the teacher wrote formulas resembling Egyptian hieroglyphics
on the chalkboard? Nothing made sense and you were sure that, even in a year, the foreign symbols of fifth grade math would never be a language you’d understand. Fifth grade math is Cystic Fibrosis." |
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A medical team explains to adults how CF affects a person's body. Great for family members, friends, or community members wanting to get an in depth look at all the areas of life CF affects for the patients and their parents. |
DID YOU KNOW
PURPLE IS THE COLOR OF CF AWARENESS?
Right click to save the pictures below and have your kids color the ribbon purple!
Use to bring awareness to the cause, or for your CF fundraising walk!
Use to bring awareness to the cause, or for your CF fundraising walk!
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FIND A WALK
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You CAN HELP!
The Cystic Fibrosis Foundation
GREAT STRIDES!
On the 30th anniversary of Great Strides – the Cystic Fibrosis Foundation’s largest national fundraising event – we celebrate the many milestones we have achieved thanks to our supporters. Each year, more than 125,000 people participate in over 400 walks across the country to support the Foundation’s mission to cure cystic fibrosis and raise awareness about this rare, genetic, life-shortening disease that makes it difficult to breathe. Their dedication over the past 30 years has resulted in tremendous progress. <-- One of our Mindfulness Mothers amazing moms is putting together a team named after her 10 month old son who has CF. You can join her team here: HERE! <-- And you can hear her story on the Mindfulness Mothers Mothers' Day 2018 Podcast event HERE. |
